And so it goes...

The picture of Chloe is of one of her favorite spots, the hammock. She loves to fall asleep in it and it seems to calm her when she gets a little fussy. Next week, Cystic Fibrosis test on Monday, ultrasound on Tuesday, eye exam on Thursday, somewhere in between fit in feeding therapy, (hopefully) living in an appointment filled life all due to Chloe's eating catastrophe, disaster, tragedy, calamity, those are all the words we could come up with to describe the terrible eating habits of my daughter. Okay, it might be a bit of an exaggeration.  She is actually doing a little bit better and maybe taking 1/3 of a bottle while awake, on good days, when the sun is in the East, while a white bird is flapping his wings near by and it is raining on the West side of Miami. In those conditions she will eat a little while awake. But the other times, we carefully time eating times with sleeping times. She also has been tolerating eating the Yo Baby yogurt that I attempt to feed her everyday. No, but really, I have to give Chloe some credit. She does seem to maybe, swallow some yogurt occasionally. She is really into putting her mouth on a cup. So, I have been trying to help her drink from a big girl cup. She is really good at blowing bubbles this way. It should improve her performance in her water babies class. I did have visions of making Chloe wonderful creations of baby foods. I dreamt of the gourmet cuisines of sweet potato puree with an apple reduction, with banana-avocado swirls. My daughter would have no appreciation for this. It can be difficult, and I find it emotionally hard. I know there are others out there who relate, and have made it passed this stage and in those I give hope that someday this will pass. I really do believe it will. Like I said, I feel she is doing a bit better. Today, Granny Janny, who is in town, gave her a slice of peach. Chloe devoured the juices and seemed to enjoy it! I was very pleased! Busy week, but at least we might have some new information from all these tests! Early Intervention has been a bit of a headache too. It is really too bad that it seems in most of the country there are long waiting lists for children who need help. It seems I had the Cadillac plan in Illinois, and I might have moved down to the Pinto plan in Florida. But we will see, they have snuck me in early for feeding therapy. So anxious for this to start. On to more fun subjects! Chloe is a very determined girl now days (I ask, when has she not been?) But she is determined to get toys way across the rug when she is not crawling yet. She will scoot, roll, crab walk, screech, to get something she wants. Pretty funny. She loves her water babies class at the Y. She is the youngest from her age to 3 years. She really is the only kid who doesn't scream the whole class. We can be singing, "Old Mcdonald had a pool..."and kids are screaming, as we are trying to sing over them. But Chloe just splashes around and really enjoys it, she also is into trying to lick the water. It has been nice having Granny Janny here, I actually had a chance to do something I once took for granted, getting my hair done. We also went to the beach today on Key Biscayne and it was a beautiful day! The water was warm and Chloe for sure digs the ocean. A true beach baby now. Well, the little one has a birthday coming up. It was on this day last year I went into the hospital for the start of the roller coaster ride, but also the start of something so wonderful and hard all at the same time in my life.